I have been on the new quarterly treatment (Amvuttra) since February 13, 2023. I was without treatment for almost three months before the drug company and a medical provider could agree on money before they would start. During that time my health declined significantly and to this day seems to continue. I feel like, in the photo, I’m walking up an escalator.
Symptoms include further decreased mobility, headaches, and stomach/digestion issues. I don’t know if some of this will reverse now I am being treated again or if this is the new normal. All I know is, I’m tired.
Thoughts and prayers are appreciated!