Navigating a Rare Disease

It’s been almost a year since I updated on my health as it pertains to my amyloidosis. As you know I retired, moved to a new state, and new treatment all in the past year. Trying to navigate the healthcare system, Medicare, and different state laws and insurance has been a huge challenge. My cynical side says the machine just wants you to quit, give up and die. The amount of hoops, rules, laws, and general bureaucratic red tape makes me think no one has ever done this before. But, I push on.

It’s mid April and I think I am set, at least for 2024 until next year, when I start it all over again with new rules and new deductibles.

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