August 2021 Amyloidosis Update

Monday, August 16th was my latest treatment. I have now completed a little over six years of treatment on a twenty-one-day cycle. If my math is correct, that is #106, but who’s counting, right?

It would be nice to find a cure but for now I’m happy with stability, or at least slowed deterioration. I am still able to walk and use a keyboard, even though much slower than just a year ago. If all goes as planned, I will remain on the drug study till January 2023. At that time, I will be reassessed and transferred to one of the longer term approved treatments.

This is definitely a marathon and I appreciate everyone’s continued prayers and support!