Mark Watson

Amyloidosis Links

In March of 2015 I was diagnosed with a terminal disease known as Amyloidosis. There are three major types of amyloidosis, AL, AA, and ATTR. My specific diagnosis was ATTR with the genetic mutation of SER97ty. Survival rate for ATTR from the onset of symptoms varies between 3 and 15 years. Since June of 2015, I have been on an experimental drug trial by Alnylam known as Patisiran.

Below are some helpful links to YouTube videos and articles to help better understand this disease:

Start Here!


Other helpful links:

Free Genetic Testing from Invitae/Alnylam Click Here
Supplements/dosage study that you may want to try: Green Tea Extract
Amyloidosis: What You Need to Know – Dr. Morie Gertz
Familial (ATTR) Amyloidosis – Dr. Morie Gertz
Cardiac Amyloidosis – Dr. Martha Grogan
Cardiac Amyloidosis – Tests and Treatment – Dr. Martha Grogan
Untangling Amyloidosis – Boston University
Amyloidosis Foundation

Presentation on Amyloidosis and Patisiran:
03-hATTR_Patisiran_RDDay-2016

If you want to keep up with updates to this post, subscribe below:

Enter your email address:

Delivered by FeedBurner