Mark Watson

April 3, 2017 Treatment

by on Apr.03, 2017, under Amyloidosis

Today as I am receiving my treatment, I thought I would take this opportunity to write an update.

Today I write from a hospital bed, making typing a little more difficult. I’m usually in a chemo chair but for some reason or the other, I got a bed. I will do my best to keep the mistakes to a minimal.

The protocol for this treatment is to first check in with the doctor or P.A. in hematology, then once approved it is off to the other wing on the 10th floor of Mayo for treatment.

Today’s physical went well. It appears my heart is staying in sinus rhythm with no issues. I do get a few PV’s (Premature Ventricular Contractions) occasionally, but nothing major. It is fairly common, even among healthy people. You may have PV’s and not even realize it. It is that feeling you get when you feel like your heart has skipped a beat or added a beat. It can happen a lot if you are startled or excited in some way.

The talk today from the health care team was positive and upbeat. We talked in terms of success and how we can cope with this disease without a transplant. The research team still believes this drug has the potential to eliminate the need to ever have a liver transplant or any other organ for that matter. Their goal is to make this a disease something that you die with and not from. Hmm. . . That’s my goal too!

Transplant with my mutation is really not an option. People with previous transplants with Ser97Ty usually only live around 7 years post-transplant – and not a good 7 years I might add. So today we keep going down this unknown path and hope for the best.

I have had a few pity parties the last 21 days, I am ashamed to say. While all of you are out there living up your glorious Facebook lives, I was just wondering if I was going to make it to my next birthday. Ironic how things can change. Oh this is my problem – not yours. It’s stinking thinking. A lot of us with debilitating or terminal illnesses get it now and then. The trick is not to stay there. But as God can only do, I got “preached” at yesterday in a message from our Pastor. If you have 25 minutes, I promise it will be worth your time.

My God, Why Have You Forsaken Me from West Side Christian Church on Vimeo.

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